The above are the amount of supplies my blood disease requires if I should have a bleed or if I am preparing for a simple procedure or surgery. I am very blessed to now know what I am dealing with and lucky enough to have the financial resources. Even with my deductible met I still owe $2,000.00. It’s an alarming kit of iv starter packs, individual needles, push saline, and a ton of factor, and Von Willebrand serum that needs to be mixed, and enough bandages, alcohol prep pads, and a huge amount of instructions to make anyone’s head spin, but I am so grateful to know what’s going on now and have a plan.
I had the unique ability to have lunch with an amazing CEO of one of our greatest hospital systems. We were meeting because I want to help a local charity but am unsure of how to go about taking them to the next level so they can help more people. This kind, and well respected CEO offered to show me the ropes with a charity that he sits on the board for. I am very lucky to know people who will help me when I need it, and this means that if given that opportunity to pay it forward yourself – you simply should! So many people are stuck in the “me” zone. Actually we all do from time to time and that is Okay. What’s not okay is when you have been given such a large gift in this life, and yet you never do anything to help your fellow man. It’s not about money, it could be something as simple as helping a friend.
You never know, you could be helping someone who suffers deeply with depression and by a simple act of kindness you just threw them a lifeline. What could feel better than that? What I have come to appreciate about being in my forties is that life should be celebrated! The younger generation will eventually learn in time too. Mothers teach your kids these life lessons early. They may not appreciate being dragged off into charity functions or helping out others just because, but they will learn a valuable life lesson and hopefully take this spirit with them into adulthood. ❤️